Motion
DEBRA
S5M-15216 · Standard Motion · lodged by Mitchell, Margaret
Lodged on
20 Dec 2018Heard / answered on
UnknownThat the Parliament recognises that DEBRA is the only national charity that provides care and support for the estimated 5,000 people in the UK who have the potentially fatal skin condition, epidermolysis bullosa (EB), and their families; understands that all of the work that DEBRA carries out is funded through charitable and voluntary donations; highlights the significance of the 125 DEBRA retail shops in the UK, 37 of which are in Scotland, that rely on donations and which generated £1.5 million in 2017, making the charity one of the top 15 charity retailers in the UK; understands that DEBRA, which also funds pioneering research to find effective treatments and ultimately find a cure for EB, has a long-term partnership with specialist EB researchers at the University of Dundee, and currently funds 14 research projects, including an international clinical trial on the effects of cannabinoid-based medicine (CBM) to address pain and itching for people with the condition, as well as stem cell research, and congratulates Simon Weston CBE on becoming the charity’s new president.
Backed by
Supported by 18 additional MSPs
Con 12
SNP 5
Lab 1
Lodged by
Mitchell, Margaret
(Scottish Conservative and Unionist Party).
- Dornan, James (SNP)
- Briggs, Miles (Con)
- Stewart, Alexander (Con)
- Balfour, Jeremy (Con)
- Mountain, Edward (Con)
- Lindhurst, Gordon (Con)
- Kerr, Liam (Con)
- Lyle, Richard (SNP)
- Gibson, Kenneth (SNP)
- Kidd, Bill (SNP)
- Corry, Maurice (Con)
- Wells, Annie (Con)
- Findlay, Neil (Lab)
- Cameron, Donald (Con)
- Greene, Jamie (Con)
- Burnett, Alexander (Con)
- Golden, Maurice (Con)
- Adamson, Clare (SNP)
No division on record.
Either the chamber agreed this motion without a vote, it was withdrawn before debate, or it predates 2011 — vote-by-vote records only run from then.
Computer-generated best guess
Possible final motion text as originally lodged
This is a computer’s best guess at applying carried amendments to the original motion text. It uses simple text rules for phrases such as “insert at end”, “after X insert Y”, and “leave out from X to end and insert Y”. Treat it as an aid, not the official motion text.
That the Parliament recognises that DEBRA is the only national charity that provides care and support for the estimated 5,000 people in the UK who have the potentially fatal skin condition, epidermolysis bullosa (EB), and their families; understands that all of the work that DEBRA carries out is funded through charitable and voluntary donations; highlights the significance of the 125 DEBRA retail shops in the UK, 37 of which are in Scotland, that rely on donations and which generated £1.5 million in 2017, making the charity one of the top 15 charity retailers in the UK; understands that DEBRA, which also funds pioneering research to find effective treatments and ultimately find a cure for EB, has a long-term partnership with specialist EB researchers at the University of Dundee, and currently funds 14 research projects, including an international clinical trial on the effects of cannabinoid-based medicine (CBM) to address pain and itching for people with the condition, as well as stem cell research, and congratulates Simon Weston CBE on becoming the charity’s new president.
Amendments and how the chamber decided
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S5M-15216Selected item20 Dec 2018 · Standard Motion · Mitchell, MargaretThat the Parliament recognises that DEBRA is the only national charity that provides care and support for the estimated 5,000 people in the UK who have the potentially fatal skin condition, epidermolysis bullosa (EB), and their families; understands that all of the work that DEBRA carries out is funded through charitable and voluntary donations; highlight...