Hansard

It is useful to follow Bob Doris. My amendments fall, like his, in multiple parts of the bill, so I ask for the committee’s forbearance.

This group of amendments is very important. It is entitled “Assessments of the terminally ill adult”, and those are at the heart of what the legislation is about. Indeed, they are critical to its operation. We have already heard that there will be a need for careful consideration by the co-ordinating medical practitioner, who will not always be able to deliver everything by themselves and will need to refer to other professionals or seek other information. It is important that we are clear about how that will work, and not just with regard to what is in the bill. Ultimately, we must recognise that it will need to be based on professional judgment, no matter how good the legislation, the guidance or the training might be. It will all boil down to medical practitioners and doctors making careful decisions in consultation with the person concerned and ensuring that that happens in a fully informed way.

The first set of amendments that I will speak to has been prepared in conjunction with CHAS. As we have already discussed with regard to previous sections, when it comes to situations involving young adults, there needs to be more careful consideration both of the nature of their illnesses, which can look very different, and of their vulnerability.

Amendment 50 provides for amendment 51, which sets out that, when someone is under the age of 25, there will be a referral to a registered social worker and a registered medical practitioner who is a specialist psychiatrist. That is to ensure not just that there is a vulnerability assessment, but that the young adult is making the decision in an informed way. It is important that, in such situations, there is referral to those specialists, because the decision involves a critical judgment, and such referrals will be critical in ensuring that the young person has capacity and understands fully what is inevitably going to be a very complex decision.

CHAS’s judgment is that the current assessment process does not make sufficient provision for assessing that capacity or providing the safeguards that it believes are needed for young people. I know that the numbers are likely to be very small, but it is important that we take the proposed approach, which I do not think would put undue pressure on social work or psychiatry systems.

Critically, the approach would not change the decision-making process, which will ultimately rest with the medical practitioner; there is simply a request that those referrals be made and those additional points of information be sought. As I set out at the beginning, these will be delicate judgments that are based on the relationship between the patient and the co-ordinating practitioner, but it is important that, in particular circumstances, additional points of information and professional judgments can be brought in.

Like some of the amendments that Bob Doris has lodged, amendment 93 has been prepared in conjunction with another organisation—in this case, Hospice UK. It is absolutely essential that anyone who requests an assisted death be fully informed of all the options, not just the one that they are requesting. In other words, when they make their request, they must be fully informed of the palliative options that are available to them. There can often be complex issues, and there might be other connotations that people might not have perceived in advance. In particular, not all doctors will have expertise in such care, which is why Hospice UK has asked that anyone who makes such a request be provided with that information and have the option of being referred to palliative care.

Amendment 75, which has been prepared in conjunction with the Royal College of Psychiatrists, is, in a sense, an extension of the amendments that were previously debated on the proposal for a register. In the royal college’s view, it is important that, where there are questions about capacity and in any borderline cases—especially complex cases such as those involving dementia or other complex mental health disorders—there is an avenue for further exploration of those issues and further consultation.

Finally, I turn to my own amendments, 5 and 6. We have heard a great deal from Bob Doris about the nature of the decision that is to be made by the co-ordinating practitioner and what that will look like. For me, that judgment is absolutely at the apex of the bill. As Bob Doris put it, we need to take great care that we do not turn this into simply a tick-box exercise.

My amendments are probing amendments. The fact is that we can put as much as we want in the bill, but we must ensure that the relationship in question is as effective as possible and that any judgment is made in as full a way as possible. To achieve that, I ask members to explore the nature of that relationship.

At the moment, co-ordinating practitioners are asked to sign the form in schedule 1, and they can literally just put their name and a date at the end of a block of text. The form does not ask any questions about the nature of the relationship or what has been explored, and it does not ask for an assessment. Bob Doris’s amendments are interesting, because they require a report, but I am simply asking the committee to think about whether we want to ask co-ordinating practitioners to declare any other information. The length of time for which a physician has known a patient is not a terribly good or accurate way of measuring the relationship, but—this is why amendments 5 and 6 are probing amendments—it is one way of getting a sense of how well the practitioner knows a patient.

Let me draw in some other examples from a health context. It is important that, although we are discussing a particular situation, the wider health system is not divorced from the discussion. I have been in a situation in which a physician whom I have known for only a very short time has provided me with an excellent level of in-depth information, which has allowed me to understand it. In particular, when my daughter was born, I was dealt a medical situation that I found quite overwhelming. However, I have also been in a situation in which I had surgery and, to this day, I am not clear about which physician performed the procedure on me.

I have also been in situations in which I have had to fight to get physicians to understand the full, broad range of circumstances, because they have been so busy. It might be that a physician ultimately signs off or authorises a procedure but, actually, a team of physicians is involved and the overstretched nature of the system means that no one person has a relationship with the individual.

We need to ensure that that is not the case under the bill—there must be a positive relationship that is well understood. The physician must not only take the time to understand the individual, their needs and why they are seeking to make this decision, but draw in other professional opinions and ensure that the person has the information that they need.

Amendments 5 and 6 do not ensure that. I am asking whether the declaration and the duties and obligations that we set out are sufficient. More needs to be done to ensure that they are, which cannot be a tick-box exercise, as we have seen happen time and time again. We can create a pro forma and a set of tick boxes, but that does not always mean that a relationship of the quality that we want, the information that we require people to have and the empowerment that we seek are provided. More needs to be done in the bill on that point.