Chamber
Plenary, 30 Sep 2009
30 Sep 2009 · S3 · Plenary
Item of business
Breast Cancer Awareness Month
I join other members in thanking Rhona Brankin for securing this important debate, in the 21st year of the NHS breast screening service. I remember Professor Forrest presenting the findings of research when screening was introduced. It is good that early doubts about it have been put to rest and that screening is now used by so many.
As other members have said, there are groups who do not take up the opportunity of screening. There needs to be retargeting, refocusing and outreach by the health service, so that screening reaches more deprived groups—to which Mary Scanlon and Margaret Smith referred—and black and minority ethnic groups, among which uptake is low at present. There is also some indication that uptake is dropping, which is slightly worrying. There needs to be a degree of renewal.
Members have mentioned research, which is important. Recently the British Medical Journal suggested that some early interventions after screening may not be appropriate. In the late 1980s and early 1990s, I was part of a research group, led by Dr Ian McIntosh, that carried out research into the psychological impact of screening. One concern was the time it took to get test results back. Margo MacDonald and Rhona Brankin have raised that issue—almost 20 years on, the concern is still the same. Anything that we can do to speed up the process would be welcome. That should surely be possible with the technology that we now have.
Misdiagnosis is a problem. One difficulty is that not all general practitioners emphasise the fact that an appointment is urgent, which would allow patients to benefit from rapid referral to the assessment that should take place. That can lead to delays. Recently a constituent wrote to my colleague Anne McGuire and me about her experience of misdiagnosis. During self-examination at the age of 40, she found a lump. The GP told her that it was a milk gland and nothing to worry about. Five months later, the lump was still there. She asked for a second opinion and was referred to Stirling royal infirmary, where she insisted on being given a mammogram. The single-view mammogram that she received was reported as negative, but she was offered a six-month review, at which the consultant undertook fine needle aspiration. She was informed that she had more than one malignant tumour and had a mastectomy, chemotherapy and radiotherapy.
The time from the original presentation to completion was one year. My constituent followed up the matter and took legal action. It was found that there had been negligence in her case—something that we would not wish.
Scottish intercollegiate guidelines network guideline 29 is clear: a woman with a lump should be assessed and, in almost every case, offered the triple assessment of clinical examination, imaging from mammography—preferably more than one view—and ultrasound or ultrasound and histology, where the lumps are taken by fine needle aspiration or core biopsy. If that does not happen, the result can be legal action. Between 2002 and 2008, legal action was taken in 30 cases. It is important to follow through in this regard; survival rates have improved, but we are still behind.
Further to my parliamentary questions of 11 December last year, I ask the minister for a response on the national advisory group's plans for digital mammography and the sentinel node biopsy programme. Like other members, I look for answers to the issues of retargeting outreach to BME groups, lymphoedema, reconstructive surgery and secondary cancer. All indicate that we still have some way to go, albeit that the situation is undoubtedly improving.
As other members have said, there are groups who do not take up the opportunity of screening. There needs to be retargeting, refocusing and outreach by the health service, so that screening reaches more deprived groups—to which Mary Scanlon and Margaret Smith referred—and black and minority ethnic groups, among which uptake is low at present. There is also some indication that uptake is dropping, which is slightly worrying. There needs to be a degree of renewal.
Members have mentioned research, which is important. Recently the British Medical Journal suggested that some early interventions after screening may not be appropriate. In the late 1980s and early 1990s, I was part of a research group, led by Dr Ian McIntosh, that carried out research into the psychological impact of screening. One concern was the time it took to get test results back. Margo MacDonald and Rhona Brankin have raised that issue—almost 20 years on, the concern is still the same. Anything that we can do to speed up the process would be welcome. That should surely be possible with the technology that we now have.
Misdiagnosis is a problem. One difficulty is that not all general practitioners emphasise the fact that an appointment is urgent, which would allow patients to benefit from rapid referral to the assessment that should take place. That can lead to delays. Recently a constituent wrote to my colleague Anne McGuire and me about her experience of misdiagnosis. During self-examination at the age of 40, she found a lump. The GP told her that it was a milk gland and nothing to worry about. Five months later, the lump was still there. She asked for a second opinion and was referred to Stirling royal infirmary, where she insisted on being given a mammogram. The single-view mammogram that she received was reported as negative, but she was offered a six-month review, at which the consultant undertook fine needle aspiration. She was informed that she had more than one malignant tumour and had a mastectomy, chemotherapy and radiotherapy.
The time from the original presentation to completion was one year. My constituent followed up the matter and took legal action. It was found that there had been negligence in her case—something that we would not wish.
Scottish intercollegiate guidelines network guideline 29 is clear: a woman with a lump should be assessed and, in almost every case, offered the triple assessment of clinical examination, imaging from mammography—preferably more than one view—and ultrasound or ultrasound and histology, where the lumps are taken by fine needle aspiration or core biopsy. If that does not happen, the result can be legal action. Between 2002 and 2008, legal action was taken in 30 cases. It is important to follow through in this regard; survival rates have improved, but we are still behind.
Further to my parliamentary questions of 11 December last year, I ask the minister for a response on the national advisory group's plans for digital mammography and the sentinel node biopsy programme. Like other members, I look for answers to the issues of retargeting outreach to BME groups, lymphoedema, reconstructive surgery and secondary cancer. All indicate that we still have some way to go, albeit that the situation is undoubtedly improving.
In the same item of business
The Deputy Presiding Officer (Alasdair Morgan):
SNP
The final item of business is a members' business debate on motion S3M-4493, in the name of Rhona Brankin, on breast cancer awareness month.
Motion debated,
That the Parliament notes with concern the increasing incidence of breast cancer in the NHS Lothian area, with nearly 3,000 women diagnosed between 2002 and ...
Rhona Brankin (Midlothian) (Lab):
Lab
I thank the members who have taken the time to attend and to participate in this debate on a hugely important issue. I begin by remembering Margaret Ewing, t...
The Deputy Presiding Officer:
SNP
I ask visitors in the gallery not to applaud.
Christine Grahame (South of Scotland) (SNP):
SNP
I congratulate Rhona Brankin on bringing the debate to the chamber and I echo her fond recollections of my colleague Margaret Ewing. I do not wish to embarra...
Malcolm Chisholm (Edinburgh North and Leith) (Lab):
Lab
I, too, congratulate Rhona Brankin on securing this important debate. Like her, I am fondly remembering Margaret Ewing on this occasion. First, I must apolog...
Mary Scanlon (Highlands and Islands) (Con):
Con
I thank and commend Rhona Brankin for securing the debate. It has, after all, been six years since Parliament last debated the issue. I also join the tribute...
The Deputy Presiding Officer:
SNP
The member should wind up.
Mary Scanlon:
Con
Scotland does not fare well on survival rates for breast cancer. We have lower rates than England, Wales, Northern Ireland and almost every other country tha...
Margaret Smith (Edinburgh West) (LD):
LD
I welcome the opportunity to speak, and I thank Rhona Brankin for securing the debate. Given her experience of breast cancer, there is no more inspirational ...
Margo MacDonald (Lothians) (Ind):
Ind
I, too, thank Rhona Brankin for bringing the issue to the Parliament for debate.I state an interest as the patron of the Scottish Breast Cancer Campaign for ...
Rhona Brankin:
Lab
Does the member agree that we also need to look at the link between breast cancer and commonly used drugs in hormone replacement therapy?
Margo MacDonald:
Ind
I could not agree more, having had my own wee lump after trying HRT. However, that is another story. Some ladies in the chamber will probably know aspects of...
Angela Constance (Livingston) (SNP):
SNP
I, too, commend Rhona Brankin for and congratulate her on securing the debate.It appears to me that campaigns to raise awareness of breast cancer or to impro...
Dr Richard Simpson (Mid Scotland and Fife) (Lab):
Lab
I join other members in thanking Rhona Brankin for securing this important debate, in the 21st year of the NHS breast screening service. I remember Professor...
The Minister for Public Health and Sport (Shona Robison):
SNP
I welcome the debate and thank Rhona Brankin for bringing it to the chamber. I thank the member and others for their kind comments about Margaret Ewing. We r...
Mary Scanlon:
Con
I take the point that the minister made on waiting times. We are talking about the waiting time from referral to treatment. Will she confirm that treatment w...
Shona Robison:
SNP
As Richard Simpson said, the SIGN guidelines for breast cancer recommend the immediate offer of breast reconstruction to all appropriate patients, but we are...
Meeting closed at 17:52.