Chamber
Plenary, 22 Mar 2007
22 Mar 2007 · S2 · Plenary
Item of business
Duchenne Muscular Dystrophy
Speaker
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That the Parliament expresses concern that people who suffer from Duchenne Muscular Dystrophy (DMD), a severe and progressive genetic muscle wasting disease predominantly affecting boys and for which there is currently no cure, are dying in Scotland on average 10 years earlier then their counterparts in England; believes that an improvement in the life expectancy and experiences of these young people must be a priority for the Scottish Executive; considers that, in addition to enhanced medical research, better support services, equipment and adapted housing can make a massive difference to the quality of life of people with DMD and can contribute to extending their life expectancy; welcomes the development in 2003 of the Scottish Muscle Network, based at Yorkhill, as a national managed clinical network benefiting patients in Stirling and across Scotland, but believes that more must be done to improve both life quality and life expectancy for people with DMD in Scotland.
In the same item of business
The Deputy Presiding Officer (Trish Godman):
Lab
The final item of business is a members' business debate on motion S2M-5521, in the name of Sylvia Jackson, on Duchenne muscular dystrophy. The debate will b...
Motion debated,
That the Parliament expresses concern that people who suffer from Duchenne Muscular Dystrophy (DMD), a severe and progressive genetic muscle wasting disease ...
Elaine Smith (Coatbridge and Chryston) (Lab):
Lab
I am pleased to speak to the motion in Sylvia Jackson's name, which I was involved in drafting. Unfortunately, Sylvia is unwell. She is upset at missing the ...
David McLetchie (Edinburgh Pentlands) (Con):
Con
Like Elaine Smith, I am sorry that Sylvia Jackson has apparently been dumbstruck by laryngitis and is unable to speak in this members' business debate on a m...
Stewart Stevenson (Banff and Buchan) (SNP):
SNP
Yesterday, we legislated with a glad heart to help sufferers from mesothelioma. In this important debate, we address the needs of a not dissimilarly sized gr...
Eleanor Scott (Highlands and Islands) (Green):
Green
When I was a community paediatrician, I came across perhaps four or five cases—I was trying to count them—of boys who had Duchenne muscular dystrophy. I want...
Mr Kenneth Macintosh (Eastwood) (Lab):
Lab
I thank Elaine Smith, Sylvia Jackson and all the members who are present for their work in bringing the debate to the Parliament and raising the profile of D...
Mrs Nanette Milne (North East Scotland) (Con):
Con
Chronic neuromuscular conditions often feature as subject matter for members' business debates, but this evening's debate is one of the few to highlight a co...
The Deputy Minister for Health and Community Care (Lewis Macdonald):
Lab
First, I must thank Sylvia Jackson, who is absent, and Elaine Smith for giving Parliament this opportunity to focus on the impact of Duchenne muscular dystro...
Meeting closed at 17:51.