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Committee

Equalities, Human Rights and Civil Justice Committee 20 January 2026 [Draft]

20 Jan 2026 · S6 · Equalities, Human Rights and Civil Justice Committee
Item of business
Neurodivergence
That is a huge area. It is not an either/or situation; it is an and situation. That is one of the challenges. We are taught, particularly in the UK, to think in a binary way and to believe that there is a single, right or wrong, way of doing something. Diagnosis can be incredibly powerful and validating; for some people, it can be life saving. On the other hand, it takes four or five hours to do a proper assessment, and there are risks in the misdiagnosis and overdiagnosis of a condition. A huge number of people who have the traits of neurodiversity but do not meet the full diagnostic criteria will also need help and support.I can give two examples from my practice to illustrate that. When I was working in an autism service, people would wait for five or six years to see me and have an assessment. However, for a large number of people, the help, advice and support that they needed was the same if they had a formal diagnosis of autism or neurodivergence as it would have been if they had traits. The tragedy was that people had been left for four, five or six years because no one wanted to make things worse. General practitioners did not want to say, “It might be autism,” because they did not know much about that and did not want to make things worse. Primary care mental health nurses would leave those people alone. Schools, teachers and everyone would withdraw because they did not know what was going on.What those people actually needed was advice about sleep, screen time, exercise and caffeine. They needed some coaching about how to manage lifestyle factors and busy environments and about how to feel more confident in social interactions. I would often give the same package of interventions to someone who had autism and someone who had traits, and the tragedy was that a person might have waited four or five years to see me and to be given that advice, yet I often would not have the time to follow them up and see how that advice was going.That is one situation where we clearly need to ensure that we get help into the hands of people and their families years before they get so stuck that they need to see a clinician like me.Another example from my practice relates to the other end of the spectrum. I saw a gentleman in his 50s who lived with his mother and had managed to maintain a part-time job. He needed his mother to help him to get dressed and prepare for the day and to help him with most activities outside of his part-time job. The health of his mother, who was in her 80s, was failing, so she said, “I won’t be able to support my son any longer, and he won’t be able to live independently.” She was desperately worried about what would happen to him. In that case, an autism diagnosis opened up care packages from social work, and that man and his family could rest easy knowing that, over the long term, he would be able to live independently in the community.For some people, a diagnosis is essential. However, if we are talking about having to meet the needs of 10 to 20 per cent of the population, we are thinking along the same lines as conditions such as obesity. Most people understand and accept that specialist surgeons and doctors are needed to help people with the most severe and complex forms of obesity, but a suite of interventions are needed across society, because an awful lot of people will not need to, or cannot, see specialist doctors.

In the same item of business

The Convener (Karen Adam) SNP
Good morning, and welcome to the second meeting in 2026 of the Equalities, Human Rights and Civil Justice Committee. We have received apologies from Paul O’K...
Dr Jim Crabb (Royal College of Psychiatrists in Scotland)
I would be glad to. Thank you so much for allowing us to come and give evidence on this issue, which is probably one of the widest and most pressing issues t...
Dr Leonie Boeing (Royal College of Psychiatrists in Scotland)
I echo those thanks for convening this meeting and giving us so much time to present our evidence. As a bit of background, I have been a consultant child and...
The Convener SNP
We move to questions from committee members, beginning with Maggie Chapman.
Maggie Chapman (North East Scotland) (Green) Green
Good morning to you both. Thank you for being here today and for the detail in your report.I am interested in a couple of different areas, one of which is di...
Dr Crabb
That is a huge area. It is not an either/or situation; it is an and situation. That is one of the challenges. We are taught, particularly in the UK, to think...
Maggie Chapman Green
I will pick up on the second example that you gave. Clearly, in that case, a diagnosis was essential to opening up care packages. I am not at all trying to d...
Dr Crabb
Absolutely. We have recommended that as one of the 10 pillars of work that are needed across society. We should take a needs-based approach to support in sch...
Dr Boeing
It is a fascinating question, and people have very different feelings about it. We must be sensitive to what an individual wants or needs, because this is al...
Maggie Chapman Green
Thanks to both of you—that is helpful. You talked about meeting needs when they arise. Some children go on to the waiting list as teenagers and, if current w...
Dr Crabb
The work is absolutely consistent with the pillars of work that we recommended in our multisystem report, which was published in October. As you pointed out,...
Maggie Chapman Green
Thanks very much. Do you have anything to add, Leonie?
Dr Boeing
We need to adapt support for kids. The context is school, education and the need to mobilise the third sector. I have never met a more passionate, motivated,...
Dr Crabb
It is about equality of access, which is why we need central commissioning in this area—the landscape is currently so fragmented. We have more than 32 differ...
Dr Boeing
One size will not fit all for every area. If we look at the workforce issues that exist, we can see that some areas have no child and adolescent psychiatrist...
Maggie Chapman Green
Your comments—especially your point about the fact that inclusion is good for everyone, regardless of diagnosis or condition—provide a helpful foundation for...
The Convener SNP
Before we move on to questions from Tess White, Paul McLennan has a supplementary.
Paul McLennan (East Lothian) (SNP) SNP
When I met you guys, a key thing that came through in our discussion was the need for a multi-agency approach. I think that you are right to say that the Gov...
Dr Boeing
Yes, and that is a massive issue that we have been talking about for decades. It is an issue across the board, but I agree that there needs to be a universal...
Dr Crabb
To follow on from that, it is one of those situations in which the answer is, “Yes—and”. We always need more people in the workforce and we need to plan for ...
Paul McLennan SNP
Thank you—that is very helpful.
The Convener SNP
We now have questions from Tess White.
Tess White (North East Scotland) (Con) Con
A few things that you have said have really resonated, and I thank you for the report. I want to pick up the point about what humans need to grow and thrive....
Dr Crabb
The answer is yes. Research comes out all the time, but we have done rapid reviews of the evidence and have worked with colleagues in NHS Inform to update it...
Tess White Con
Noise is another issue, as Dr Boeing said. I wonder whether, when schools were designed to be open plan, anyone actually thought about the human factors.I wa...
Dr Boeing
It is not my area of expertise, but research has shown that ultra-processed foods are linked to increased mental distress and have an effect on performance, ...
Tess White Con
They used to play outside.
Dr Boeing
The digital stuff is a real hot potato at the moment, but there is a lot of work going on in that area. There is also a degree of urgency. Dr Jim Crabb is pa...
Dr Crabb
I am. We have the lessons from history. There was literally no argument about cigarette smoking and lung disease, but we waited decades before anything was d...
Tess White Con
You talked about 45,000 people waiting for diagnosis, and I think that more than half of them are children. Is there a huge risk arising from the fact that p...