Committee
Citizen Participation and Public Petitions Committee 09 October 2024
09 Oct 2024 · S6 · Citizen Participation and Public Petitions Committee
Item of business
Continued Petitions
People with Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (PE2038)
I note that, in addition to Mr Marra and Emma Roddick, a number of our colleagues—Bob Doris, Angela Constance, Bill Kidd, Pauline McNeill, Màiri McAllan, Daniel Johnson, Martin Whitfield and Michelle Thomson—have all been engaged on the issue, so it has attracted a considerable amount of attention and concern among parliamentary colleagues. I am happy to take forward all the suggestions that have been made. We might also want to ask about the view that the current way of moving forward might not be the best model to achieve the end result. It would be useful to put that point to the Scottish Government to see what its reaction is, because that view is obviously very clearly felt. We will keep the petition open. There are a number of ways in which we can continue to pursue the issue. I thank the petitioner for lodging the petition and Michael Marra for joining us this morning.
In the same item of business
The Convener
Con
PE2038 calls on the Scottish Parliament to urge the Scottish Government to commission suitable NHS services for people with hypermobile Ehlers-Danlos syndrom...
Michael Marra (North East Scotland) (Lab)
Lab
Good morning, convener.
The Convener
Con
We previously considered the petition on 4 October last year, when we agreed to write to the Scottish Government and the national services division. The Scot...
Michael Marra
Lab
I greatly appreciate being afforded the opportunity to address the committee. This is the first time that I have spoken to the committee about the petition, ...
The Convener
Con
Thank you very much. There were a couple of good suggestions in there.
Foysol Choudhury
Lab
We should keep the petition open and, as well as doing what Mr Marra suggested, write to the Scottish Government to ask whether it accepts the petitioner’s v...
The Convener
Con
I note that, in addition to Mr Marra and Emma Roddick, a number of our colleagues—Bob Doris, Angela Constance, Bill Kidd, Pauline McNeill, Màiri McAllan, Dan...