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Committee

Citizen Participation and Public Petitions Committee 15 May 2024

15 May 2024 · S6 · Citizen Participation and Public Petitions Committee
Item of business
New Petitions
Chronic Kidney Disease (PE2081)
PE2081, on making chronic kidney disease a key clinical priority, which was lodged by Professor Jeremy Hughes, on behalf of Kidney Research UK in Scotland, calls on us to do exactly what it says on the tin, which is to urge the Scottish Government to make chronic kidney disease a key clinical priority. The SPICe briefing notes that chronic kidney disease is a term that can be used to cover a range of kidney impairments, from a small loss of kidney performance with no symptoms to a life-threatening condition that requires regular dialysis or a kidney transplant. In responding to the petition, the Scottish Government states that the relevant cabinet secretary and minister have previously corresponded with the petitioner to advise that Scottish Government does not intend to increase the number of health strategies for individual conditions at this time. It is noted that the Government’s approach to clinical conditions policy is kept under regular review. The Government response also notes work to support people with kidney disease, including the launch of a national policy on the reimbursement of electricity costs for home dialysis for patients. We have also received a submission from the petitioner, who is concerned that the Scottish Government’s criteria for choosing what will and will not be designated a clinical priority remains unclear. The petitioner poses two specific questions: why is chronic kidney disease not already a clinical priority, and why has the Scottish Government taken the decision not to increase the number of health strategies for individual conditions or to assign the status of clinical priority, and the civil service support that goes with it, to any additional conditions. The petitioner also highlights the potential benefits to patients and the clinical community where a condition affecting them has been designated a clinical priority: for example, bringing clarity on who within the Scottish Government has day-to-day responsibility for developing condition-specific strategies and action plans. Do any members have any comments or suggestions for action?

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