Hansard

I, too, thank Clare Adamson for bringing this important debate to the chamber and for her heartfelt and honest speech about the reality for patients and their families. It was well received and I appreciate her doing that.

On behalf of Scottish Labour, I mark complex regional pain syndrome awareness month, which, as we have noted, was in November. I pay tribute to all those who work to raise awareness of CRPS and the impact that it can have on individuals and their families. As the motion states, CRPS is a debilitating chronic disorder that mostly affects the limbs and is characterised by severe pain, changes of bones, joints and skin, swelling, temperature and colour changes and motor dysfunction. Like other members, I was totally unaware of the effects and the presentation of symptoms.

As we have heard, those characteristics are debilitating and are often not recognised—that was clear from the speeches of Clare Adamson and other members—but we know that approximately 15,000 people across the United Kingdom live with the condition.

At this juncture, as Clare Adamson and others have done, I pay tribute to CRPS UK and Burning Nights, which are registered charities in the UK and do tremendous work not only to increase awareness of CRPS but to support those who live with it and to help them to improve their lives through advice, information, briefings and the development of research in this important area. From the briefings that we were kindly sent, I gather that we need to make sure that we are resourcing research into the condition on behalf of people who are suffering.

We have heard that Burning Nights holds an annual conference to bring together in a formal forum people who are impacted to enable them to discuss matters pertaining to the condition, and CRPS UK also holds regular events that raise awareness, inform people of the condition and encourage them to think about the importance of research in the area.

We have heard tonight that what is really important is that sufferers of CRPS are helped by the charities, families and loved ones and, often, volunteers who are keen to publicise the impact of the disorder on individuals. The latter is a key point. CRPS is so poorly understood that we need engagement from our clinicians to make sure that it is seen as an important area to research. I am keen to hear from the minister whether the Scottish Government understands that and whether it can see the need to progress research in that area on behalf of individuals. I am sure that we can do that through the work of the charities and the families.

I will make one final point about research. I often mention allied health professionals, because I have worked in that area previously. I know that they have been looking to come forward with ideas for research, because a multidisciplinary approach can be helpful. They recognised that there was not enough research in the work that they did, so they have put a lot of effort into doing that. Any time that I get an opportunity to speak with them, as I often do, I will ask how that is going and about what they have done.

I thank the national health service and the charities, but mostly I thank the patients and their families for being so committed to moving forward with this poorly understood condition, which causes a lot of pain and distress to the families that are involved. I thank Clare Adamson again for bringing the debate to the chamber.