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Chamber

Meeting of the Parliament 05 December 2023

05 Dec 2023 · S6 · Meeting of the Parliament
Item of business
Disability Equality and Human Rights

I absolutely am. The cases that I am referring to relate to individuals who had complex needs and care needs during the pandemic. Indeed, the first line of my amendment makes a point about the need for investigations into

“the failings of Scottish ministers during the pandemic”

around human rights. It is important that we consider that today.

Another constituent of mine who also raised concerns, specifically around human rights breaches, was Heather Goodare, who had a “Do not attempt cardio resuscitation” notice placed on her during her stay in hospital. She did not discover that until she had left hospital, when she found it buried within her notes. Her daughter Roseanne had refused to sign a “Do not resuscitate” order when she was first asked to, when her mother was admitted to hospital.

Campaigners are raising such concerns because they want our human rights legislation to ensure that vulnerable patients across Scotland do not face such practices in the future. I have raised those points with former and current First Ministers, as we have not had a full investigation by Government into those practices that took place during the pandemic. There are many examples of cases in which ministers need to consider what were arguably breaches of human rights in Scotland during the pandemic.

We also need to consider people having their care packages suspended—in particular, young people with disabilities having their independent support packages removed or cut and having to move home with their elderly parents. The Government motion states:

“That the Parliament notes the ambition for Scotland to be a world leader in both the legislation for, and realisation of, human rights”.

I agree, but we need to take this opportunity to consider the consequences of a pandemic and human rights violations.

Last Sunday marked the United Nations international day of persons with disabilities, which aims

“to promote the rights and well-being of all persons with disabilities in all spheres of society and development”

and

“To increase awareness of persons with disabilities in every aspect of political, social, economic, and cultural life”

across the world. The disability employment gap in Scotland remains too wide, as I think we all recognise. In 2022, it was 31.9 percentage points, with 82.5 per cent of non-disabled people in employment, compared with 50.7 per cent of disabled people.

The Government motion

“notes the recent consultation on a Human Rights Bill to incorporate economic, social and cultural rights ... into Scots law”.

I think that there is cross-party welcome for that opportunity. Many colleagues across the chamber have explored where they could introduce their own bills in this area. I note, in particular, the work that Pam Duncan-Glancy and Jeremy Balfour have done on members’ bills to do just that and to advocate and advance rights for disabled people in Scotland. Ministers do not necessarily seem to want to engage with bills from Opposition parties in this area, but I hope that today’s debate presents an opportunity for ministers to think again on that.

Members who are outside the Government SNP and Green parties want to make progress and are doing so themselves with members’ bills but have not had the necessary engagement from the Government. It perhaps does not need the numbers, but there are ideas from across the chamber that the Government is missing. As the Scottish Human Rights Commission’s executive director, Jan Savage, stated:

“The Scottish Government has not done enough to ensure disabled people’s human rights are fully realised and we are pushing for protection of disabled people’s rights to employment, independent living and an adequate standard of living”.

I hope that the minister, who is in a relatively new role, will take on board the opportunity that other members present with their members’ bills.

In the previous session of Parliament, I proposed Frank’s law—a bill to extend free personal care to people under 65. Parliament united and helped to deliver that policy, but we still need many councils to follow through to deliver it in full. I hope that the Scottish Government will choose to work with Parliament to make progress on all human rights issues in this session, and that the Government will work to deliver in full Anne’s law, as I outlined earlier, and Calum’s law, which is about young people in disabled services—Daniel Johnson is working on a member’s bill on that.

Evidence and experience show that, when barriers to inclusion are removed for them, people with disabilities are empowered to fully participate in our society, and our entire community benefits. Barriers faced by persons with disabilities are, therefore, a detriment to society as a whole, and accessibility is necessary to achieve progress and development for all. I hope that the debate gives us an opportunity to consider many of the things that still need to change in Scotland.

I move amendment S6M-11537.1, to insert at end:

“; expresses concern over the number of families, children and disabled people in temporary accommodation; calls on the Scottish COVID-19 Inquiry to investigate the failings of Scottish ministers during the pandemic such as instances of disabled people being moved out of hospital without family decision-making, and disabled people having their care and independent support packages cut or suspended, and further calls on the Scottish Government to ensure that all those in receipt of Adult Disability Payment and Personal Independence Payment are also entitled to claim Social Security Scotland’s Winter Heating Payment, to deliver the Coming Home Implementation recommendations for young people with learning disabilities and complex care needs being held inappropriately in hospital settings, to support and deliver Anne’s Law and Calum’s Law, and to fully implement and deliver Frank’s Law.”

15:11  
References in this contribution

Motions, questions or amendments mentioned by their reference code.

In the same item of business

The Deputy Presiding Officer (Liam McArthur) LD
The next item of business is a debate on motion S6M-11537, in the name of Emma Roddick, on championing disability equality and human rights. 14:47
The Minister for Equalities, Migration and Refugees (Emma Roddick) SNP
I am very glad to be speaking to the motion, because, for many reasons, it is an important time of year for us to mark. First, we are just five days away fro...
Alex Cole-Hamilton (Edinburgh Western) (LD) LD
I do not disagree with anything that the minister has said thus far in an excellent speech. Does she agree that the gold standard for protecting the rights o...
Emma Roddick SNP
That is an excellent point. The member will be aware that the UNCRPD is one of four treaties that we are seeking to incorporate into Scots law as part of our...
Oliver Mundell (Dumfriesshire) (Con) Con
That is not the feedback that I often get from young people in my constituency. Those living in rural areas find those programmes very hard to access, and go...
Emma Roddick SNP
Oliver Mundell asked me recently about that particular service, and I am more than happy to reach out and speak again about what is happening. Obviously, our...
Paul O’Kane (West Scotland) (Lab) Lab
Does the minister recognise the significant challenges in relation to delays in the administration of ADP and the challenging wait times to get through to So...
Emma Roddick SNP
Absolutely. I would point out that Social Security Scotland has taken urgent action around decision making to speed it up. In the past quarter, we processed ...
Miles Briggs (Lothian) (Con) Con
I apologise for the delay in my attendance in the chamber. I will open with the words of Natasha Hamilton, daughter of Anne Duke, who gave evidence last mon...
The Deputy Presiding Officer (Annabelle Ewing) SNP
Please resume your seat for a second, Mr Briggs. I am finding your speech very interesting, but I am looking at the amendment that was selected—although it h...
Miles Briggs Con
I absolutely am. The cases that I am referring to relate to individuals who had complex needs and care needs during the pandemic. Indeed, the first line of m...
Paul O’Kane (West Scotland) (Lab) Lab
I am pleased to participate in the debate and to speak about the experience of disabled people in Scotland so soon after the international day of persons wit...
Alex Cole-Hamilton (Edinburgh Western) (LD) LD
I am grateful to the Government for bringing its motion to the chamber for debate. When I think back to my time as convener of the for Scotland’s disabled ch...
Martin Whitfield (South Scotland) (Lab) Lab
On that point, is the member aware of the stark statistic that three out of four users of the Trussell Trust’s food banks are from a household with a disable...
Alex Cole-Hamilton LD
Something is fundamentally wrong in our provision—in the safety net that we in this place seek to provide for families affected by disability—if such a dispr...
The Deputy Presiding Officer SNP
We now move to the open debate. I remind all members who wish to speak in the debate to ensure that they have pressed their request-to-speak buttons. 15:25
Kate Forbes (Skye, Lochaber and Badenoch) (SNP) SNP
The aim captured in the Government’s motion is that all disabled people should have freedom, dignity, choice and control over their lives. I hope that all of...
Alex Cole-Hamilton LD
I very much enjoyed listening to the story of Kate Forbes’s uncle, but before she told us that story, she talked about giving people with disabilities a voic...
Kate Forbes SNP
That is absolutely fair and right. It is not just about listening to disabled people, but about having the courage to introduce policies that reflect the div...
The Deputy Presiding Officer SNP
We have quite a bit of time in hand, so interventions can easily be taken without any reduction in speaking time. With that, I call Annie Wells to be followe...
Annie Wells (Glasgow) (Con) Con
I welcome the chance today to talk about the challenges that disabled people face in Scotland. There is much in the motion that we can welcome. We agree that...
Kate Forbes SNP
I appreciate the member’s contribution. I am not sure that drug and alcohol deaths are specific to the discussion on disabled people that we are having right...
Annie Wells Con
My colleague Jeremy Balfour has proposed a bill to introduce a disability commissioner. We support increasing the distance in the adult disability payment mo...
Kevin Stewart (Aberdeen Central) (SNP) SNP
Worldwide, more than 1 billion people are disabled, and in Scotland, that figure is well over 1 million. That is a quarter of our population whose day-to-day...
The Deputy Presiding Officer SNP
I call Pam Duncan-Glancy, who joins us online. 15:45
Pam Duncan-Glancy (Glasgow) (Lab) Lab
The Scottish Parliament—rightly—always recognises the international day of disabled people, and we should be very proud of that. However, this year sees a ma...
Karen Adam (Banffshire and Buchan Coast) (SNP) SNP
It is a privilege to talk on this subject. It is no secret to the Parliament that campaigning for human rights is a deep passion of mine, mostly because of t...
Martin Whitfield (South Scotland) (Lab) Lab
It is a real pleasure to follow Karen Adam’s very powerful speech. Her ability to illustrate her childhood resulted in me almost being transported into that ...
Clare Haughey (Rutherglen) (SNP) SNP
I am pleased to contribute to today’s debate. The World Health Organization estimates that around 1.3 billion people worldwide—roughly one in six—have some f...
Maggie Chapman (North East Scotland) (Green) Green
I give special thanks to the disabled people’s organisations that provided briefings for the debate. Most of them included testimonies that give voice to the...