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Chamber

Meeting of the Parliament (Hybrid) 19 May 2022

19 May 2022 · S6 · Meeting of the Parliament
Item of business
Long Covid

Absolutely. As I said, from the conversations that the cabinet secretary and I have had, I think that he agrees with us on that point.

Long Covid is hitting the country hard and impacting individuals, families, the labour market and the delivery of healthcare services. As the cabinet secretary said, long Covid hits patients hard; as a practising general practitioner, I have countless examples.

There is a young mum who had a job, used to run five to 10km a day and has a family, but now she can barely make it to the toilet without feeling breathless. She had no choice but to give up work, so financial pressures are coming and she has been forced to sell her house and move in with her parents.

I know a doctor in Scotland who was forced to quit because of the exhaustion and headaches, which made it impossible to function. Telephone consultations were out of the question because she was so breathless she could not do them.

Then there is our youth. More than 80,000 12 to 16-year-olds across the United Kingdom are struggling to function with long Covid.

In my Scottish Parliament maiden speech, on 27 May last year, I underscored the problem of long Covid, and on 1 June, as members of the Scottish Parliament debated the national health service recovery plan, I called on the Cabinet Secretary for Health and Social Care to commit to establishing a specialist long Covid clinic.

Our paper, “Treating Long COVID in Scotland”, which came out shortly afterwards, sets out an action plan that includes investing in a network of specialist clinics and an app-based treatment service, ring-fencing funds for Covid care, and establishing a programme of research to discover more about the disease and its long-term impact.

Having extensively researched how regions across the UK were responding to long Covid, I recommended that the Scottish Government should take the holistic approach developed by Hertfordshire Community NHS Trust. That involves a rehab pathway with a multidisciplinary team including GPs, physios, respiratory nurses, dieticians and clinical psychologists who can refer patients to other clinics, and much of it is delivered remotely. The team in Hertfordshire freely admits that it did not get everything right. It would happily tell us how to get things going in Scotland, but I am concerned that we might want a north-of-the-border solution.

We are still waiting for a solution. On 9 September, the Cabinet Secretary for Health and Social Care announced, with a fanfare, £10 million for long Covid and a promise to deliver the best models of care to help health boards respond to the condition. Yet where are we now, in May 2022?

While England has 90 long Covid clinics—and I accept that not all have received positive feedback—Scotland does not have any. As for the £10 million to support long Covid services, that sum has been tweaked, with £3 million allocated for this year and next and more money to come. Will that new money even touch the sides? Will there be a clear audit trail on how it is spent? I hope so.

Scotland faces a tsunami of long Covid cases but the Scottish Government has not acted, and that is not lost on long Covid patients, who are suffering. I received an email this week from a man who caught Covid in 2020 and has been suffering from cognitive and visual issues for two years. No clear clinical pathway exists for him. He said that his mental health had not been looked at and that he did not feel that mental health had been part of the long Covid dialogue, yet it is crushing thousands of Scots with the condition—he knows of two long Covid sufferers who have recently died from suicide. He signed off by saying that he had watched the cabinet secretary on BBC’s “The Nine” and was deeply disappointed in the clear lack of understanding regarding the situation that sufferers face.

Today, we were hoping that the cabinet secretary had good news for the country’s 151,000 sufferers. We would welcome more detail around the role of a long Covid co-ordinator, for example on whether they would be clinical or non-clinical and whether they would be available throughout Scotland.

What would good news look like for people who are watching the debate from the public gallery and around the country? To start, we need a joined-up approach in which GPs can make speedy referrals to a Covid clinic without having to see the patients multiple times, and in which they can make multiple referrals to specialties such as occupational therapists, physios, cardiologists or respiratory specialists.

We also need to urgently create an NHS long Covid app for Scotland. We do not need to reinvent the wheel or repeat the issues of the failed Covid passport app. It should be noted that the Barts Health NHS Trust in London had an app up and running in December 2020. We should be learning from tried and tested best practice from north and south of the border or from east and west of the country—it does not matter.

In our major cities, it might still be desirable to bring specialties together under one roof, but a central belt solution does not work for the Highlands or the Borders. Many long Covid sufferers simply cannot travel, which is why the Hertfordshire model works, as it is not one size fits all.

NHS staff are going above and beyond but they cannot provide the service that patients deserve, because we are failing to tackle long Covid head on. We need to launch and operate a network of long Covid clinics. Tackling long Covid is key for the whole of Scotland, to speed its recovery from the coronavirus pandemic. Long Covid sufferers are demanding—begging for—long Covid clinics, and we need to listen to them.

We cannot support the Scottish Government’s motion, because it does not go far enough, despite some of the things that we agree with.

I refer members to my entry in the register of members’ interests, as a practising NHS GP.

I move amendment S6M-04472.3, to leave out from “believes” to the end and insert:

“notes that 151,000 people in Scotland are currently estimated to have long COVID in Scotland, including 64,000 who have been experiencing symptoms for more than a year; recognises that the number of people experiencing symptoms for more than a year has doubled in the last six months, and that faster action from the Scottish Government could have alleviated this and reduced the very substantial pressure on primary care; regrets the pace of the approach taken by the Scottish Government, which has seen funding allocated a full six months after it was promised; regrets that a lack of adequate data from the Scottish Government has contributed to its slow and inadequate response; notes that £10 million for all NHS boards over three financial years will be wholly insufficient to tackle the scale of the problem; regrets the Scottish Government’s continued failure to deliver specialist long COVID clinics in Scotland, meaning that people in Scotland are being left behind without access to the treatment they deserve; calls, in consequence, on the Scottish Government to deliver a network of long COVID clinics across Scotland; requests that the Scottish Government undertakes work with relevant clinical and regulatory partners to develop a long COVID clinical pathway, and asks the Scottish Government to adopt an app-based treatment service to reduce pressures on other parts of the NHS.”

15:18  
References in this contribution

Motions, questions or amendments mentioned by their reference code.

In the same item of business

The Presiding Officer (Alison Johnstone) NPA
The next item of business is a debate on motion SM6-04472, in the name of Humza Yousaf, on long Covid. I invite members who wish to speak to press their requ...
The Cabinet Secretary for Health and Social Care (Humza Yousaf) SNP
I welcome the opportunity to discuss our collective commitment to supporting the health and wellbeing of people in Scotland who are living with the long-term...
Brian Whittle (South Scotland) (Con) Con
I am grateful to the cabinet secretary for taking my intervention. Would he consider assessing certain types of long Covid as a disability, potentially bring...
Humza Yousaf SNP
It is my understanding that, under current legislation, those who are suffering from the effects of long Covid could be termed as having a disability, depend...
Alex Cole-Hamilton (Edinburgh Western) (LD) LD
I am grateful to the cabinet secretary for giving way, and for taking time, in his remarks, to talk about young people and children who suffer with long Covi...
Humza Yousaf SNP
I ask the member to forgive me—I do not know if I have the figure for children. I will have a look at that, and come back to him; perhaps we will address tha...
Pam Duncan-Glancy (Glasgow) (Lab) Lab
Can the cabinet secretary confirm whether that data collection will include data on inequalities in relation to the way that long Covid has affected differen...
Humza Yousaf SNP
As I said in response to Alex Cole-Hamilton, I think that it absolutely should. I am being up front and frank about this: I do not think that we have the lev...
Jackie Baillie (Dumbarton) (Lab) Lab
Will the cabinet secretary give way?
Humza Yousaf SNP
I will shortly. I have taken a fair number of interventions. That funding responds directly to needs that have been highlighted by boards and their learning...
Jackie Baillie Lab
Could the cabinet secretary confirm for me—because I think that clarity is important—that the £3 million that he talks about as being additional is actually ...
Humza Yousaf SNP
Yes, it is part of that £10 million fund, but what I mean by “additional” is that it is on top of what has already been spent to help to address and alleviat...
The Presiding Officer NPA
I call Sandesh Gulhane to speak to and move amendment S6M-04472.3. 15:09
Sandesh Gulhane (Glasgow) (Con) Con
It is great that this key debate on long Covid has been rescheduled. However, given the growing scale of the problem, it is many months overdue. The cabinet...
Alex Cole-Hamilton LD
Sandesh Gulhane has described his experience in the foothills of the pandemic. Does he recognise that people who had long Covid from the first wave perhaps d...
Sandesh Gulhane Con
I agree absolutely. It is important that if we offer support to sufferers of long Covid, one of the key tenets should be that that should not depend on their...
Humza Yousaf SNP
As Dr Gulhane is a clinician, he will be able to confirm that a person’s receipt of support for the long-term effects of Covid is not reliant on their having...
Sandesh Gulhane Con
Absolutely. As I said, from the conversations that the cabinet secretary and I have had, I think that he agrees with us on that point. Long Covid is hitting...
Jackie Baillie (Dumbarton) (Lab) Lab
As others have said, the debate is long overdue, having been cancelled last month to spare the cabinet secretary’s blushes because not one penny of long Covi...
Humza Yousaf SNP
Is Jackie Baillie seriously suggesting that our hard-working nurses, doctors and AHPs have not been treating people with long Covid? If they have been treati...
Jackie Baillie Lab
That is so disappointing, because, even if nobody else knows this, the cabinet secretary knows that the NHS is stretched to breaking point. It is in crisis. ...
Alex Cole-Hamilton (Edinburgh Western) (LD) LD
Finally and belatedly, we debate this devastating condition in Government time. It is shameful that the SNP-Green coalition has made sufferers wait this long...
The Presiding Officer NPA
We move to the open debate. 15:31
Evelyn Tweed (Stirling) (SNP) SNP
I very much welcome the Scottish Government’s recognition of the impact of long Covid and its commitment to help people who are suffering from that debilitat...
Alex Cole-Hamilton LD
I have heard several Government members say that a one-size-fits-all approach will not work, and that is right, but does Evelyn Tweed not recognise that, up ...
Evelyn Tweed SNP
I do not agree, and I will come on to say why. The symptoms can be life changing, as Angela, a constituent of mine, told me. She said: “Last year I was lea...
Brian Whittle (South Scotland) (Con) Con
I am pleased to have the opportunity to speak in the debate. It has taken the Scottish Government too long to recognise, document and respond to long Covid, ...
Humza Yousaf SNP
Does Brian Whittle accept that there is a mountain of evidence that long Covid clinics are inadequate, that they are ineffective and that they simply delay e...
Brian Whittle Con
As I am about to go on to tell the cabinet secretary, what I am highlighting is not a new problem for the Scottish Government. Prior to the pandemic, Scotlan...
The Presiding Officer NPA
Please speak through the chair, Mr Whittle.