Meeting of the Parliament (Hybrid) 24 June 2020
I am not a member of the Social Security Committee but, as a former convener, I take an interest in its continuing work. I thank the convener and members for their work on the stage 1 report. As has been mentioned, that happened during the Covid crisis, as we were all getting used to a new way of working, and it was not without its challenges, but the committee has come to a very good conclusion in its stage 1 report.
That had an impact on me too, because, not being a committee member, my first port of call was to look back at the evidence session. I found that it was not available because of technical difficulties, so I had to resort to the Official Report. It is therefore an absolute pleasure today to see so many committee members speak, both virtually and in the chamber.
In my time as convener of the committee, fairness, dignity and respect were at the heart of what we were doing in developing a social security system in Scotland. It is good to see some positive additional work in that area, still with those principles at heart.
We have heard a few concerns about how the issue of appointees, and the permanency of such arrangements, might be handled, and that it should be done with diligence. That is an important area. It is unfortunate that wicked people might intend to abuse the situation, but it is absolutely right that we give adults who have capacity the choice to appoint someone to receive their benefits on their behalf.
The dignity of people for whom revealing a diagnosis may have a detrimental health impact has been very much considered under the bill. That is a delicate issue but, judging from the speeches that I have heard this afternoon, I think that everyone on the committee appreciates just how delicate that situation can be. We should be able to build safeguards into the system to ensure that, when it is in the minds of clinicians that that is the right thing to do, something is not revealed that could be detrimental to someone.
I am mindful of the sensitivities of the issues around terminal diagnosis. When we were developing the social security system, that probably caused most of my concern about getting things right for people. We were presented with a UK system that depended on six-month accuracy for a diagnosis of life expectancy. That is totally unrealistic and cruel, and it would have been devastating to claimants who, in the last months or weeks of their lives, could have had their benefits cut because of that restrictive rule. I am very happy that we did not embed that into our system. The bill goes further, ensuring that any terminal diagnosis is available as early as possible, so that the right support is there for people at the most difficult point in their lives.
I know that many multiple sclerosis and motor neurone disease nurses and Macmillan Cancer Support nurses will know much more about their patients than a doctor might know, and that they will be the best people to take the decision to switch and let the patients know, to ensure that the fast-track benefits get to people at the most difficult time in their lives.
I thank the committee for its work. I think that the five proposals will strengthen our social security system in future, and I look forward to seeing developments at stage 2.
16:07