Meeting of the Parliament 28 March 2019
I was speaking as the chief whip for the Scottish Government and about the SNP group, in particular. I was looking at the people I work with on a day-to-day basis.
My sister Jennifer was part of the Scottish Government-sponsored campaign to get more elected members with disabilities in local councils. Jennifer had a stroke when she was 25 that left her with a disability. We need to make sure that all parties—mine especially—work to be representative of all the people of Scotland.
I have often asked why someone with a disability should not get the support they need to access work, in particular. It is important that we push the boundaries. I will tell members a personal story regarding that—and Stacey will probably kill me for it when I leave the chamber. I had been an MSP for two years. My working practices were that I would leave first thing in the morning and come home at 10.30 at night. Stacey would want to talk, but I had to get ready to head back to Edinburgh in seven or eight hours, to get involved in work again. I suggested—in a discussion that became a rammy—that, as we met in politics, she should be involved with me in the Parliament. She has now been working for me for seven years.
Seven years later, Stacey is still here and she now runs my parliamentary office. She keeps me in check when I am in Parliament and ensures that I am organised and get to where I need to be at the right time. Although Stacey is an important part of team Paisley, I need to accept that, due to her worsening condition, she is not physically able to be here every day. People with MS can have issues with fatigue, so I need to understand that there will be days when Stacey needs to work from home.
The private sector, in particular, needs to provide flexibility for people who have disabilities. Luckily, the Parliament is a good environment for someone with a disability to work in. Stacey loves working here. I am not sure whether that attitude has anything to do with working with me, but we are still married and, seven years later, we are still working together.
The Scottish Government’s on-going work on the issue is particularly helpful. “A Fairer Scotland for Disabled People: Employment Action Plan” sets out the Government’s commitment to disabled people in Scotland and recognises the valuable contribution that people with disabilities make to Scottish society and to Scotland as a whole. For me, the matter goes further than that: without the love and support of Stacey, I probably would not be here—God only knows where I would be without her. That support includes her work in the Parliament, such as going about her business with a smile and ensuring that I am able to deliver for the people of Paisley. However, Stacey is a volunteer, and she keeps telling me that she is an unpaid volunteer—that is an argument for another day.
The Scottish Government’s goal is that every one of the 1 million disabled people in Scotland will have the control, dignity and freedom to live the life that they choose, and that they will receive the support that they need to do so. Disabled people make up 20 per cent of our population.
I will provide some examples of how difficult it is in the workplace for those who are living with MS. The Westminster all-party parliamentary group for multiple sclerosis produced a report titled “Employment that works: Supporting people with MS in the workplace”, which states:
“(30%) of respondents who are currently in work said they had experienced MS-related stigma or discrimination by colleagues or managers over the past five years.”
The all-party group also said that the on-going symptoms that those with MS have, particularly fatigue, limit the range of hours that they can work and the jobs that they can do. That is why our office needs to be so flexible with Stacey, who is a volunteer and sometimes needs to work from home. We now have the technology to enable her to do that, and we need to ensure that businesses catch up with us and become aware of the pool of talent that could be part of their team.
I welcome the fact that the Scottish Government wants to work with employers, because we need to establish best practice for disabled people, including those with MS, so that they can access the workplace. We need to ensure not just physical access, but access to the top positions, as disabled people are more than capable of holding them. There needs to be a change in attitude among employers and in the workplace. People need to see through the disability. The MS Society’s “My MS, My Needs” survey found that 39 per cent of those with MS were not working or were looking for work. Of those with MS in the workplace, 69 per cent have relapsing remitting MS. It is easier for those with relapsing remitting MS in the workplace but, for those with secondary progressive MS, such as Stacey, there are difficulties.
I welcome the debate. To make the strategy work, we need to encourage employers to see through the disability and accept the abilities of individuals. Far too many people with MS, in particular, are not getting the opportunities to be all that they can be. If I could say one thing to employers, it would be this: the issue might appear difficult, but it is our job and their job to create the space and support for disabled people in Scotland.
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