Chamber
Meeting of the Parliament 29 May 2013
29 May 2013 · S4 · Meeting of the Parliament
Item of business
Chronic Pain Services
I note that Mr Pearson’s speech seemed to be a speech of two halves, and that the tone of the first half was just a little bit wrong. I do not understand how he managed to bring independence into a consensual debate like this; that was a complete non sequitur and a bit insulting to the substance of the debate. It might be out of character, but there we are.
As other members have done, I pay tribute to Susan Archibald and her petition, and to all those who are involved in the wider campaign to improve the situation for those who live with chronic pain. I have not followed the issue particularly closely, so today’s debate has given me the opportunity to find out more. Having said that, a number of individual constituents have made representations to me in the past on chronic pain issues. Indeed, I am sure that we all have, as I have, a family member who lives with chronic pain, so we can all see the social and emotional consequences of it as much as the medical consequences.
I welcome the progress that has been made with regard to chronic pain. In doing so, I note the concerns of the cross-party group in the Scottish Parliament on chronic pain, which supplied a briefing for this afternoon’s debate, and those of the Health and Social Care Alliance Scotland. Those groups have raised concerns about the pace of implementation of recommendations that started as early as 2007 with “Getting to GRIPS with Chronic Pain in Scotland”, and about the progress that has been made by each of the 14 health boards. I believe that progress has been made, but we must draw attention to the fact that concerns have been raised about that progress.
Of course, it is right for passionate and committed campaigners to be in a hurry for quick progress to be made on chronic pain management—that is the role of doughty campaigners, for which I pay tribute to them. Health boards and the Government must take a planned approach to developing new or improved services. The important date for many will be April 2014, by which time each health board will need to have in place a chronic pain service delivery plan.
Since 2009, we have had a national lead clinician whose job it is to spearhead and champion the development of pain management services. A national chronic pain steering group has been developed, as well as a Scottish service model for chronic pain. I would welcome information from the Scottish Government on the degree of preparedness for the April 2014 deadline. Many people see that date as an end point for having a comprehensive system in place to tackle chronic pain, rather than a starting point. More information on the preparedness of each health board would be welcome.
There is a new set of SIGN guidelines that should underpin any managed clinical network and how it will work. I note that NHS Greater Glasgow and Clyde now has a managed clinical network for the management of chronic pain.
I am interested to know how the care pathways will work for those who live with chronic pain. How will sufferers seek support? The documentation may be available on file and briefings may have been provided to MSPs, but what will be the reality for those who live with chronic pain?
I would welcome more information on how the Scottish Government will ensure a consistent approach in the quality of service that is provided across all health boards. However, although I mention the need for a consistent approach, I accept that there is a need for localised delivery models and that is what I want to concentrate much of my speech on.
One of the organisations that I work with in Maryhill is Revive MS Support—multiple sclerosis is a significant cause of chronic pain for many—which provides services such as physiotherapy, aromatherapy, reflexology, counselling, hyperbaric oxygen therapy and speech and language therapy, including swallowing and cognitive advice. I could cite many more examples of the services that Revive MS Support provides, but the important point is that the organisation provides an holistic approach to help those living with chronic pain, such as MS sufferers and their families, by supporting them in the community.
Revive MS Support is based in the north of Glasgow, but it also does outreach work in Paisley, Douglas, Hamilton, Glasgow’s south side and beyond. Therefore, as others have said, in looking at the network of support that is available for those living with chronic pain, it is important that we consider the support that can be provided by the third sector or voluntary sector.
I want to put on record the words of a lady called Jenny Wilson Best, who is an ambassador for Revive MS Support. She said:
“REVIVE offer many different therapies but for me it was the ‘Fatigue Management Group’ that allowed me to find myself again. I renamed it ‘Anger Management’ then ‘Sadness Management’ and finally to ‘Acceptance Management’. I cried a lot but I don’t cry anymore. Now I get on with my life and live it to the full. I still suffer fatigue and chronic pain and have learnt how to use my wheelchair but thanks to REVIVE I have found a path upon which I can walk.”
The reason for my using that quote is that people may not consider organisations such as Revive MS Support to be clinician led, but they provide a quality service that supports people living with chronic pain. When we look at the strategy in each health board area, we need to ensure that there is breathing space for organisations such as Revive MS Support. I should put on record that Revive MS Support recently got a £20,000 grant from the Scottish Government to provide an additional support worker for its outreach work.
As other members have done, I pay tribute to Susan Archibald and her petition, and to all those who are involved in the wider campaign to improve the situation for those who live with chronic pain. I have not followed the issue particularly closely, so today’s debate has given me the opportunity to find out more. Having said that, a number of individual constituents have made representations to me in the past on chronic pain issues. Indeed, I am sure that we all have, as I have, a family member who lives with chronic pain, so we can all see the social and emotional consequences of it as much as the medical consequences.
I welcome the progress that has been made with regard to chronic pain. In doing so, I note the concerns of the cross-party group in the Scottish Parliament on chronic pain, which supplied a briefing for this afternoon’s debate, and those of the Health and Social Care Alliance Scotland. Those groups have raised concerns about the pace of implementation of recommendations that started as early as 2007 with “Getting to GRIPS with Chronic Pain in Scotland”, and about the progress that has been made by each of the 14 health boards. I believe that progress has been made, but we must draw attention to the fact that concerns have been raised about that progress.
Of course, it is right for passionate and committed campaigners to be in a hurry for quick progress to be made on chronic pain management—that is the role of doughty campaigners, for which I pay tribute to them. Health boards and the Government must take a planned approach to developing new or improved services. The important date for many will be April 2014, by which time each health board will need to have in place a chronic pain service delivery plan.
Since 2009, we have had a national lead clinician whose job it is to spearhead and champion the development of pain management services. A national chronic pain steering group has been developed, as well as a Scottish service model for chronic pain. I would welcome information from the Scottish Government on the degree of preparedness for the April 2014 deadline. Many people see that date as an end point for having a comprehensive system in place to tackle chronic pain, rather than a starting point. More information on the preparedness of each health board would be welcome.
There is a new set of SIGN guidelines that should underpin any managed clinical network and how it will work. I note that NHS Greater Glasgow and Clyde now has a managed clinical network for the management of chronic pain.
I am interested to know how the care pathways will work for those who live with chronic pain. How will sufferers seek support? The documentation may be available on file and briefings may have been provided to MSPs, but what will be the reality for those who live with chronic pain?
I would welcome more information on how the Scottish Government will ensure a consistent approach in the quality of service that is provided across all health boards. However, although I mention the need for a consistent approach, I accept that there is a need for localised delivery models and that is what I want to concentrate much of my speech on.
One of the organisations that I work with in Maryhill is Revive MS Support—multiple sclerosis is a significant cause of chronic pain for many—which provides services such as physiotherapy, aromatherapy, reflexology, counselling, hyperbaric oxygen therapy and speech and language therapy, including swallowing and cognitive advice. I could cite many more examples of the services that Revive MS Support provides, but the important point is that the organisation provides an holistic approach to help those living with chronic pain, such as MS sufferers and their families, by supporting them in the community.
Revive MS Support is based in the north of Glasgow, but it also does outreach work in Paisley, Douglas, Hamilton, Glasgow’s south side and beyond. Therefore, as others have said, in looking at the network of support that is available for those living with chronic pain, it is important that we consider the support that can be provided by the third sector or voluntary sector.
I want to put on record the words of a lady called Jenny Wilson Best, who is an ambassador for Revive MS Support. She said:
“REVIVE offer many different therapies but for me it was the ‘Fatigue Management Group’ that allowed me to find myself again. I renamed it ‘Anger Management’ then ‘Sadness Management’ and finally to ‘Acceptance Management’. I cried a lot but I don’t cry anymore. Now I get on with my life and live it to the full. I still suffer fatigue and chronic pain and have learnt how to use my wheelchair but thanks to REVIVE I have found a path upon which I can walk.”
The reason for my using that quote is that people may not consider organisations such as Revive MS Support to be clinician led, but they provide a quality service that supports people living with chronic pain. When we look at the strategy in each health board area, we need to ensure that there is breathing space for organisations such as Revive MS Support. I should put on record that Revive MS Support recently got a £20,000 grant from the Scottish Government to provide an additional support worker for its outreach work.
In the same item of business
The Deputy Presiding Officer (Elaine Smith)
Lab
The next item of business is a debate on motion S4M-06746, in the name of Alex Neil, on ensuring access to high-quality sustainable services for people livin...
The Cabinet Secretary for Health and Wellbeing (Alex Neil)
SNP
I have great pleasure in speaking to my motion on chronic pain. In doing so, however, I want to pay tribute to those who have campaigned long and hard on the...
Jackson Carlaw (West Scotland) (Con)
Con
May I potentially short-circuit the cabinet secretary’s consultation by saying that I think that we would welcome all three approaches?
Alex Neil
SNP
If the member got his Government to reverse its cuts, I might be able to afford all three.As there are at least three possible scenarios, I cannot accept Lab...
Bruce Crawford (Stirling) (SNP)
SNP
The cabinet secretary will be aware that chronic pain is often unseen and that, as such, it often goes unrecognised. Constituents have told me of their exper...
Alex Neil
SNP
Absolutely. We will publish a document fairly soon on the pros and cons of each model. We will then go out to consultation, and everybody will be free to hav...
Margo MacDonald (Lothian) (Ind)
Ind
I thank the cabinet secretary for giving way, particularly when he was in full flow.I welcome the cabinet secretary’s remark about stakeholders, because folk...
Alex Neil
SNP
Margo MacDonald makes a very fair point. One of our clear objectives is to raise awareness in the medical profession of not only chronic pain but what can an...
Jackie Baillie (Dumbarton) (Lab)
Lab
I welcome the opportunity to participate in the debate, not just on behalf of my party but as one of three co-conveners of the cross-party group on chronic p...
Alex Neil
SNP
Does the member accept that I am delivering on her manifesto commitment?
Jackie Baillie
Lab
I encourage the cabinet secretary to read the rest of our manifesto. If he delivered on all our manifesto commitments, I might have more praise for him.The c...
Margo MacDonald
Ind
Is there an agreed standard for the severity of chronic pain among the health boards? Is it staged and so on? How do the health boards judge the requirement ...
Jackie Baillie
Lab
There will indeed be standards, and the health boards will have a system that they operate. However, those are matters for clinical judgment rather than the ...
Jackson Carlaw (West Scotland) (Con)
Con
I, too, welcome the many volunteers to the Parliament. I will not add to the flattery, because they have had 10 years of that and have found that it does not...
Aileen McLeod (South Scotland) (SNP)
SNP
I welcome the opportunity to speak in this debate on the important issue of chronic pain. I am pleased to see so many people in the public gallery to listen ...
Jayne Baxter (Mid Scotland and Fife) (Lab)
Lab
As we know, chronic pain has been the subject of parliamentary discussion for more than 10 years. The number of reports that have been produced on chronic pa...
John Wilson (Central Scotland) (SNP)
SNP
I welcome the cabinet secretary’s motion on chronic pain. I come to the debate with the background of being one of the three co-conveners of the cross-party ...
Graeme Pearson (South Scotland) (Lab)
Lab
The NHS faces many challenges, to which it often responds by delivering positive outcomes. However, chronic pain has been and still is the ghost in the machi...
Bob Doris (Glasgow) (SNP)
SNP
I note that Mr Pearson’s speech seemed to be a speech of two halves, and that the tone of the first half was just a little bit wrong. I do not understand how...
The Deputy Presiding Officer
Con
You should draw to a close, please.
Bob Doris
SNP
As we move towards health and social care integration, health boards and local authorities should be looking to disinvest some of their funds in favour of su...
Gil Paterson (Clydebank and Milngavie) (SNP)
SNP
I welcome the opportunity to speak in the debate from both a personal and a general perspective. I speak from a personal perspective in that, having suffered...
Margo MacDonald
Ind
He never told me.
Gil Paterson
SNP
I believe that the stigma that is attached to chronic pain and the lack of understanding of it have been reduced drastically over the past years. However, I ...
Hanzala Malik (Glasgow) (Lab)
Lab
I welcome the opportunity to talk about access to services for people living with chronic pain. I have personal experience of the issue. As I come from a fam...
Joan McAlpine (South Scotland) (SNP)
SNP
I, too, welcome the campaigners to the gallery, particularly the petitioner Susan Archibald. I had the great pleasure of hearing Susan speak at the recent de...
Drew Smith (Glasgow) (Lab)
Lab
Will the member give way?
Joan McAlpine
SNP
No—I want to make progress.I am fortunate in not having suffered serious illness in my life; indeed, I have experienced severe pain on only two or three occa...
Margo MacDonald
Ind
I appreciate that the member wants to make headway, but I note that two or three members have already referred to going to Bath as if it were like going to M...
Joan McAlpine
SNP
The member makes a reasonable point; indeed, I was just about to address the substance of her comment.I welcome the fact that the cabinet secretary will cons...