Chamber
Meeting of the Parliament 29 May 2013
29 May 2013 · S4 · Meeting of the Parliament
Item of business
Chronic Pain Services
I encourage the cabinet secretary to read the rest of our manifesto. If he delivered on all our manifesto commitments, I might have more praise for him.
The cabinet secretary and I share the objective of setting up a residential service, because we often think about people who have to make a return journey of 800 to 1,000 miles to get a service. The distances can be even longer; I understand that one sufferer from Shetland was sent on a marathon return journey of more than 1,600 miles. The number of patients might be small, but the people who are subjected to such gruelling travel are perhaps at the most acute end of suffering. I therefore welcome the cabinet secretary’s promise to create a Scottish in-patient service.
I sound a note of caution. Specialist provision, by its very nature, cannot be scattered across Scotland, especially when there are gaps in the most basic services, as we acknowledge to be the case.
There has been a lack of action on the matter in the past, so I applaud the cabinet secretary’s determination to set up an in-patient service, which is in stark contrast with what went before. In the past few years, more than £1.1 million of Scottish taxpayers’ money has been used to send just 119 patients on long journeys, rather than spent on creating a Scottish in-patient service. Wales has long had an in-patient centre at Powys, and I commend that model to the cabinet secretary. Our amendment is about not bricks and mortar but recreating specialist provision in Scotland, which, because of its nature, I fear needs to be centralised.
Members might know that Susan Archibald brought a petition to the Parliament on behalf of the cross-party group. She asked for residential services to be provided in Scotland, not Bath. She asked for improved and consistent access to pain services for patients throughout Scotland. As a severe pain sufferer, her evidence to the Public Petitions Committee was courageous and profoundly affecting. I do not think that anybody remained unmoved by her story. I am extremely proud of the campaigning by the cross-party group’s volunteers over the years because, despite obstacles, they have persevered to keep their focus on improving services.
I turn to local services. The Scottish service model for chronic pain, to which the health secretary referred, was outlined by the late Dr Peter Mackenzie, our first lead clinician in chronic pain, in 2009. However, so far only six of the 14 health boards have the model in place. I accept that more are in the pipeline but how long do patients have to wait? I share the cabinet secretary’s desire to accelerate the rate of change.
We now hear from the Scottish Government that it will hold health boards accountable for implementing the model. That is welcome, but real improvement cannot be implemented without funding. We know that 10 of the 14 health boards do not record a budget for chronic pain treatment. That is not me saying that; it is the campaigners who the cabinet secretary rightly praised a few moments ago. The previous health secretary declined to give any direct funding to stimulate the provision of chronic pain services beyond initial funding of some £50,000 for a managed clinical network in Glasgow. For the past few years, it appears that the Scottish Government has put chronic pain—which affects some 780,000 people in Scotland—in the slow lane. Now, at least, in complete contrast to his predecessor, we have a health secretary prepared to inject some momentum.
Accelerating the pace of change is essential if we are to see a difference on the ground, but we also need transparency. Information on the true state of chronic pain services has not always been evident. I doubt that even the cabinet secretary has been told about some of the issues that have arisen. For example, was he told that NHS Lanarkshire, which has one of Scotland’s worst chronic pain rates, has only two part-time consultants working with pain? That is one whole-time equivalent for a population of 562,000, with an estimated 26 per cent of the population suffering from chronic pain. We know that Lanarkshire has had some small seed money for an improvement group, but the need is clearly far greater than that. We have consultants who are part time—they are also, in the main, anaesthetists. That also applies to people in multidisciplinary teams—the nurses, physiotherapists and clinical psychologists. In many areas, disciplines such as occupational therapy and physiotherapy are just not represented.
I know that money is tight but the cabinet secretary needs to be aware that more than 50 patients were suddenly removed from NHS Lanarkshire’s waiting list last year, apparently without the knowledge of the doctors or the staff. They were sent to a private hospital for pain treatment but were not seen by a pain specialist. Making a waiting list look better is not confined just to a few areas. That money could have been better spent on securing more time for chronic pain treatment in the NHS.
The cabinet secretary and I share the objective of setting up a residential service, because we often think about people who have to make a return journey of 800 to 1,000 miles to get a service. The distances can be even longer; I understand that one sufferer from Shetland was sent on a marathon return journey of more than 1,600 miles. The number of patients might be small, but the people who are subjected to such gruelling travel are perhaps at the most acute end of suffering. I therefore welcome the cabinet secretary’s promise to create a Scottish in-patient service.
I sound a note of caution. Specialist provision, by its very nature, cannot be scattered across Scotland, especially when there are gaps in the most basic services, as we acknowledge to be the case.
There has been a lack of action on the matter in the past, so I applaud the cabinet secretary’s determination to set up an in-patient service, which is in stark contrast with what went before. In the past few years, more than £1.1 million of Scottish taxpayers’ money has been used to send just 119 patients on long journeys, rather than spent on creating a Scottish in-patient service. Wales has long had an in-patient centre at Powys, and I commend that model to the cabinet secretary. Our amendment is about not bricks and mortar but recreating specialist provision in Scotland, which, because of its nature, I fear needs to be centralised.
Members might know that Susan Archibald brought a petition to the Parliament on behalf of the cross-party group. She asked for residential services to be provided in Scotland, not Bath. She asked for improved and consistent access to pain services for patients throughout Scotland. As a severe pain sufferer, her evidence to the Public Petitions Committee was courageous and profoundly affecting. I do not think that anybody remained unmoved by her story. I am extremely proud of the campaigning by the cross-party group’s volunteers over the years because, despite obstacles, they have persevered to keep their focus on improving services.
I turn to local services. The Scottish service model for chronic pain, to which the health secretary referred, was outlined by the late Dr Peter Mackenzie, our first lead clinician in chronic pain, in 2009. However, so far only six of the 14 health boards have the model in place. I accept that more are in the pipeline but how long do patients have to wait? I share the cabinet secretary’s desire to accelerate the rate of change.
We now hear from the Scottish Government that it will hold health boards accountable for implementing the model. That is welcome, but real improvement cannot be implemented without funding. We know that 10 of the 14 health boards do not record a budget for chronic pain treatment. That is not me saying that; it is the campaigners who the cabinet secretary rightly praised a few moments ago. The previous health secretary declined to give any direct funding to stimulate the provision of chronic pain services beyond initial funding of some £50,000 for a managed clinical network in Glasgow. For the past few years, it appears that the Scottish Government has put chronic pain—which affects some 780,000 people in Scotland—in the slow lane. Now, at least, in complete contrast to his predecessor, we have a health secretary prepared to inject some momentum.
Accelerating the pace of change is essential if we are to see a difference on the ground, but we also need transparency. Information on the true state of chronic pain services has not always been evident. I doubt that even the cabinet secretary has been told about some of the issues that have arisen. For example, was he told that NHS Lanarkshire, which has one of Scotland’s worst chronic pain rates, has only two part-time consultants working with pain? That is one whole-time equivalent for a population of 562,000, with an estimated 26 per cent of the population suffering from chronic pain. We know that Lanarkshire has had some small seed money for an improvement group, but the need is clearly far greater than that. We have consultants who are part time—they are also, in the main, anaesthetists. That also applies to people in multidisciplinary teams—the nurses, physiotherapists and clinical psychologists. In many areas, disciplines such as occupational therapy and physiotherapy are just not represented.
I know that money is tight but the cabinet secretary needs to be aware that more than 50 patients were suddenly removed from NHS Lanarkshire’s waiting list last year, apparently without the knowledge of the doctors or the staff. They were sent to a private hospital for pain treatment but were not seen by a pain specialist. Making a waiting list look better is not confined just to a few areas. That money could have been better spent on securing more time for chronic pain treatment in the NHS.
In the same item of business
The Deputy Presiding Officer (Elaine Smith)
Lab
The next item of business is a debate on motion S4M-06746, in the name of Alex Neil, on ensuring access to high-quality sustainable services for people livin...
The Cabinet Secretary for Health and Wellbeing (Alex Neil)
SNP
I have great pleasure in speaking to my motion on chronic pain. In doing so, however, I want to pay tribute to those who have campaigned long and hard on the...
Jackson Carlaw (West Scotland) (Con)
Con
May I potentially short-circuit the cabinet secretary’s consultation by saying that I think that we would welcome all three approaches?
Alex Neil
SNP
If the member got his Government to reverse its cuts, I might be able to afford all three.As there are at least three possible scenarios, I cannot accept Lab...
Bruce Crawford (Stirling) (SNP)
SNP
The cabinet secretary will be aware that chronic pain is often unseen and that, as such, it often goes unrecognised. Constituents have told me of their exper...
Alex Neil
SNP
Absolutely. We will publish a document fairly soon on the pros and cons of each model. We will then go out to consultation, and everybody will be free to hav...
Margo MacDonald (Lothian) (Ind)
Ind
I thank the cabinet secretary for giving way, particularly when he was in full flow.I welcome the cabinet secretary’s remark about stakeholders, because folk...
Alex Neil
SNP
Margo MacDonald makes a very fair point. One of our clear objectives is to raise awareness in the medical profession of not only chronic pain but what can an...
Jackie Baillie (Dumbarton) (Lab)
Lab
I welcome the opportunity to participate in the debate, not just on behalf of my party but as one of three co-conveners of the cross-party group on chronic p...
Alex Neil
SNP
Does the member accept that I am delivering on her manifesto commitment?
Jackie Baillie
Lab
I encourage the cabinet secretary to read the rest of our manifesto. If he delivered on all our manifesto commitments, I might have more praise for him.The c...
Margo MacDonald
Ind
Is there an agreed standard for the severity of chronic pain among the health boards? Is it staged and so on? How do the health boards judge the requirement ...
Jackie Baillie
Lab
There will indeed be standards, and the health boards will have a system that they operate. However, those are matters for clinical judgment rather than the ...
Jackson Carlaw (West Scotland) (Con)
Con
I, too, welcome the many volunteers to the Parliament. I will not add to the flattery, because they have had 10 years of that and have found that it does not...
Aileen McLeod (South Scotland) (SNP)
SNP
I welcome the opportunity to speak in this debate on the important issue of chronic pain. I am pleased to see so many people in the public gallery to listen ...
Jayne Baxter (Mid Scotland and Fife) (Lab)
Lab
As we know, chronic pain has been the subject of parliamentary discussion for more than 10 years. The number of reports that have been produced on chronic pa...
John Wilson (Central Scotland) (SNP)
SNP
I welcome the cabinet secretary’s motion on chronic pain. I come to the debate with the background of being one of the three co-conveners of the cross-party ...
Graeme Pearson (South Scotland) (Lab)
Lab
The NHS faces many challenges, to which it often responds by delivering positive outcomes. However, chronic pain has been and still is the ghost in the machi...
Bob Doris (Glasgow) (SNP)
SNP
I note that Mr Pearson’s speech seemed to be a speech of two halves, and that the tone of the first half was just a little bit wrong. I do not understand how...
The Deputy Presiding Officer
Con
You should draw to a close, please.
Bob Doris
SNP
As we move towards health and social care integration, health boards and local authorities should be looking to disinvest some of their funds in favour of su...
Gil Paterson (Clydebank and Milngavie) (SNP)
SNP
I welcome the opportunity to speak in the debate from both a personal and a general perspective. I speak from a personal perspective in that, having suffered...
Margo MacDonald
Ind
He never told me.
Gil Paterson
SNP
I believe that the stigma that is attached to chronic pain and the lack of understanding of it have been reduced drastically over the past years. However, I ...
Hanzala Malik (Glasgow) (Lab)
Lab
I welcome the opportunity to talk about access to services for people living with chronic pain. I have personal experience of the issue. As I come from a fam...
Joan McAlpine (South Scotland) (SNP)
SNP
I, too, welcome the campaigners to the gallery, particularly the petitioner Susan Archibald. I had the great pleasure of hearing Susan speak at the recent de...
Drew Smith (Glasgow) (Lab)
Lab
Will the member give way?
Joan McAlpine
SNP
No—I want to make progress.I am fortunate in not having suffered serious illness in my life; indeed, I have experienced severe pain on only two or three occa...
Margo MacDonald
Ind
I appreciate that the member wants to make headway, but I note that two or three members have already referred to going to Bath as if it were like going to M...
Joan McAlpine
SNP
The member makes a reasonable point; indeed, I was just about to address the substance of her comment.I welcome the fact that the cabinet secretary will cons...