Meeting of the Parliament 04 February 2016
There are almost 800,000 carers in Scotland. Although around 30,000 to 40,000 people stop caring for a loved one each year, the overall number hardly varies, because a similar number replaces them. According to Carers UK, the economic value of that unpaid care is in excess of £10 billion, which is an enormous amount of money that is saved for our public services; the emotional value of that support and care is inestimable.
Many of us here will have our own experiences of the role that carers play. If one’s friends or family were affected, few would hesitate to help. However, the responsibility of caring for a vulnerable person often goes way beyond helping; it can be more demanding and stressful and go on for much longer than carers might have predicted at the outset of their caring responsibilities.
The care that is needed and provided is vital. Too often, it is not apparent to others; it goes on behind closed doors and away from the agencies that can provide help. Indeed, many carers do not even recognise themselves as such—they simply think that they are doing what is right. As a consequence, the value of that care is not always recognised by the public or by those who provide public services. In fact, the care is often taken for granted. Too often, support service providers do not even know that someone is a carer. People often care for loved ones alone, with little or no external support or engagement with support services, and we need to identify carers at the earliest possible stage, so that they know what support is available to them.
It is common for carers with additional support needs not to be identified as such. One of the challenges that face organisations that wish to support young carers in particular is to actually identify who and where they are; after all, many young people either do not see themselves as having that role or do not want to ask for help. That is why it is so important to take a multi-agency approach to all stages of the care process and to enshrine that in law to ensure that all agencies know their roles and responsibilities in the field.
Underpinning the moves to change that situation for the better is the preparation of carer strategies by the NHS and local government. That work is important, because the NHS can provide a great deal of support for not just the person being cared for but carers themselves. Far too often, however, carers are not aware of the support that is available to them. The needs of carers must be at the forefront of all our minds and at the centre of policy in this field. Indeed, it is clear that we need a coherent, multi-agency approach for most carers.
At stage 2, my colleague Rhoda Grant was able to introduce into the bill a carers charter to ensure that carers know their rights. However, there are many gaps in the bill that still need to be addressed. I supported all the amendments in Rhoda Grant’s name, because they began the process of addressing those gaps. They sought to introduce bereavement support, requirements in relation to planning, a duty to provide advocacy, a general practitioner register of carers, an appeals mechanism, provisions on equalities and national criteria for assistance.
Many people questioned the national criteria that were the subject of an amendment at stage 2. I am pleased that Rhoda Grant considered the issue carefully and worked with local authorities and carers organisations to find a solution to the problem. Along with the Health and Social Care Alliance Scotland, I am concerned that the proposed introduction of eligibility criteria that are defined locally by local authorities will lead to a postcode lottery of support for carers across Scotland. As the alliance put it,
“Whilst local best practice and scope for local variation to satisfy varying needs and caring trends are to be fully supported, we do not believe that there is any justification for a variation in the levels of need which trigger an entitlement to carer support.”
Although the Government did not support Rhoda Grant’s amendments in that regard today, I note the minister’s willingness to address the matter should it become an issue for carers in the months and years to come.
The introduction of a duty to support carers, which is linked to eligibility criteria, is the gateway to new rights for carers. In light of that, clear rights must be available to all, rather than being left at the discretion of local criteria. Support for carers and the people to whom they provide care in considering what arrangements should be in place in an emergency is a vital preventative measure. Effective emergency and future planning is another hugely important aspect of the bill. The security that comes with knowing that a plan is in place should an unexpected event happen is hugely positive for carers.
Marie Curie raised the important issue of what happens to carers who are nearing the end of their caring role. Marie Curie said that planning for the end of the caring role should begin as soon as is appropriate and should be part of the adult carer support plan and young carer statement. The organisation is also surely correct to express concern about the lack of information and advice for people at the end of their caring role.
We should be continuously looking to improve the framework in the bill. Carers issues should be part of the policy-making process. I hope that the bill will improve carers’ lives, but we must recognise that there is much more for us to do.